PANDAS: Day 1

June 8, 2014
Sunday morning we went to church. We moved here in early April, and were still in the process of finding a church home. Haley has always been a momma’s girl, but this morning she became absolutely terrified of being left in Sunday school. I literally had to pry her hands off of mine and hand her to her Daddy, and he sat with her and her sister in class. The entire time, she kept her eyes on him, scared he might leave. Afterward I took her to the bathroom and noticed she had B.O.! She’s 6! She’s never had a bad body odor before. I attributed it to her absolute terror throughout the entire class time. She was in fight or flight mode the whole time, her body completely stressed out.

That night we were getting them ready for bed and I got her toothbrush ready. When I tried to give it to her she suddenly became petrified that it was dirty, germy, and wouldn’t touch it, worse yet, she didn’t want me to touch her either, absolutely certain I had germs on my hands. She was unreasonably afraid, and this had never happened before. I finally put the toothbrush handle in a plastic baggie and let her hold it through the bag to brush her teeth. That night as I sat in their room, I googled, “Child scared of germs”. OCD (Obsessive Compulsive Behavior) came up.

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This blog is written by an anonymous mom. PANDAS disease is ugly. It’s practically unheard of, but it’s not rare. 1 in 200 kids has it. That’s right up there with childhood diabetes…but my pediatrician had never heard of it. This leads me to the question, how many kids out there are misdiagnosed, drugged for “behavioral issues”, OCD, schizophrenia, ADD, Autism, ADHD, Anorexic, or taken from their “bad” parents by well meaning doctors, teachers, and lawyers who don’t know about PANDAS. How many parents are searching for answers every night, in silent agony over losing their child, and have no one to talk to, no one who understands. This blog is for those parents. Those doctors. Those teachers. But mostly, it’s for those children. The ones with the fear in their eyes and the haunted look. The chapped and bloodied hands from washing incessantly. The lost childhood.

Lord, multiply this, share it with those who need it most. I don’t have time, or resources, or knowledge to get it into their hands. If it will bless them, let this reach them. In Jesus Name I pray for each hurting child. Amen.

Disclaimer:
This blog exists for informational purposes only. Posts should NOT be regarded as medical advice.
No author or commentator shall be liable for advice given.

It is every parent’s responsibility to determine whether camel milk, donkey milk, specific supplements, the ACC protocol or other biomedical interventions are appropriate for their child.
Furthermore, dosing for vitamins and supplements needs to be tailored to an individual’s needs with the help of a professional.

Thank you for reading the blog, please share it with those in need of hope!

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