If you have a child with PANDAS, you have a fear of strep that’s right up there with nuclear war and ebola. Other parents fear child predators. You fear an outbreak of strep at school. It’s no joke when a little germ can make your child lose her mind. And you feel like you’re losing your mind right along with her. We protect them where we can, we disinfect, we sanitize, we douse them in essential oils, and we pray. We pray. A lot.
Now, to add to your list of ways you can protect her (or him) from strep invaders. Get them out of your refrigerator!!! Yeah, the super healthy stuff you’re putting in her lunch box, it’s full of strep. Sorry about that. Here it is.
Probiotics. How hideous to find out the probiotic you’ve been forcing your kid to take actually has strep strains in it. Check the label. We use Gut Pro, off and on, strep free and formulated for PANDAS. I figure we get lots of good probiotics in our camel / donkey milk, so I’m not a huge pusher of the powder all the time. http://organic3.com/gutpro/
Yogurt. Yep. That yummy store bought yogurt that’s full of “good probiotics”, also, most likely, contains strep strains. (also called Streptococcus thermophilus, or S. Thermophilus, so it doesn’t sound so scary.) For Pandas kids, this can set them off. Sorry, Dannon. Get out, Yoplait. We don’t need you round here no mo’.
Milk Kefir. Sorry. We loved it too. I pushed it whenever we were on antibiotics. Little did I know ““Kefir contains several major strains of friendly bacteria…[such as] Lactobacillus Caucasus, Leuconostoc, Acetobacter species, and Streptococcus species.”
Water Kefir. Ugh. I thought this one would be ok…alas. Look at the other name for Streptococcus strains. Right there at the bottom of the list. Species Streptococcus: S. lactis
So. What’s a PANDAS mom to do?
DONKEY MILK!!! Donkey milk has 8 strains of probiotics, and the unique L. Plantarum strains boost butyric acid production, which is linked to gut microbiome health. More info here: Italians Target Infants with Donkey Milk Probiotics
KOMBUCHA!!! Yummy, you can make it yourself, (order a scooby on Amazon.) Or you can buy it at the health food store for premium prices. I’m not going into how to make it, I’ve done it, my girls love it, and it’s awesome. And way cheaper than store bought. Still, I love the fizzy store bought variety. Delicous. And nutritous. And STREP FREE!!! This is the best post from Harmonious Belly that I’ve found summing up the strains in each of the above. She spells it out, so I don’t have to.
And Kombucha is supposed to help fight strep! Who knew? Love it even more. Too bad I have to share it with the kids.
This post is written by an anonymous mom. PANDAS disease is ugly. It’s practically unheard of, but it’s not rare. 1 in 200 kids has it. That’s right up there with childhood diabetes…but my pediatrician had never heard of it. This leads me to the question, how many kids out there are misdiagnosed, drugged for “behavioral issues”, OCD, schizophrenia, ADD, Autism, ADHD, Anorexic, or taken from their “bad” parents by well meaning doctors, teachers, and lawyers who don’t know about PANDAS. How many parents are searching for answers every night, in silent agony over losing their child, and have no one to talk to, no one who understands. This blog is for those parents. Those doctors. Those teachers. But mostly, it’s for those children. The ones with the fear in their eyes and the haunted look. The chapped and bloodied hands from washing incessantly. The lost childhood.
Lord, multiply this, share it with those who need it most. I don’t have time, or resources, or knowledge to get it into their hands. If it will bless them, let this reach them. In Jesus Name I pray for each hurting child. Amen.
This blog exists for informational purposes only. Posts should NOT be regarded as medical advice.
No author or commentator shall be liable for advice given.
It is every parent’s responsibility to determine whether camel milk, donkey milk, specific supplements, the ACC protocol or other biomedical interventions are appropriate for their child.
Furthermore, dosing for vitamins and supplements needs to be tailored to an individual’s needs with the help of a professional.
Thank you for reading the blog, please share it with those in need of hope!