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FEAR. Every mom knows it. I was one of those “paranoid” moms who carried around hand sanitizer at the zoo. I knew what BPA was and why it was awful years before the FDA. I should have an MBA in car seat safety. If there was a purchase to be made, I researched it until my eyes crossed. Looking back, maybe God was preparing me for this PANDAS disease battle. The horrible days, followed by long nights spent searching for hope, anything to get our little girl back.
Now she’s back. She’s great. She’s WELL. But I’m still afraid. Still afraid that tomorrow, or the next day, or a month, or ten years down the road, it could come back. What if she goes to college and eats a non-paleo potato chip? What if it’s not really a childhood disease? What if her sister gets it too?
And the other nagging fear…what if I’m leading other parents down a path that won’t work for their child? Dashing another hope? Wasting more of their time and money?
Fear. But that’s not from God. “For God has not given us a spirit of fear and timidity, but of power, love, and self-discipline.” II Timothy 1:7
The timid part of me wants to let it go. I’m just a mom. What do I know? But I know what helped our little girl. I know where we were, and where we are now. How can I not share that with other hurting parents? I would have given anything if someone had shared it with me. Hope. When everything seems like darkness. There is still HOPE.
“I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him. Then you will overflow with confident hope through the power of the Holy Spirit.” Romans 15:13
Because when it comes down to it, our hope isn’t in Donkey Milk. Or Camel Milk. Or the Autoimmune Paleo diet. Our hope is in the Lord.
This blog is written by an anonymous mom. PANDAS disease is ugly. It’s practically unheard of, but it’s not rare. 1 in 200 kids has it. That’s right up there with childhood diabetes…but my pediatrician had never heard of it. This leads me to the question, how many kids out there are misdiagnosed, drugged for “behavioral issues”, OCD, schizophrenia, ADD, Autism, ADHD, Anorexic, or taken from their “bad” parents by well meaning doctors, teachers, and lawyers who don’t know about PANDAS. How many parents are searching for answers every night, in silent agony over losing their child, and have no one to talk to, no one who understands. This blog is for those parents. Those doctors. Those teachers. But mostly, it’s for those children. The ones with the fear in their eyes and the haunted look. The chapped and bloodied hands from washing incessantly. The lost childhood.
Lord, multiply this, share it with those who need it most. I don’t have time, or resources, or knowledge to get it into their hands. If it will bless them, let this reach them. In Jesus Name I pray for each hurting child. Amen.
This blog exists for informational purposes only. Posts should NOT be regarded as medical advice.
No author or commentator shall be liable for advice given.
It is every parent’s responsibility to determine whether camel milk, donkey milk, specific supplements, the ACC protocol or other biomedical interventions are appropriate for their child.
Furthermore, dosing for vitamins and supplements needs to be tailored to an individual’s needs with the help of a professional.
Thank you for reading the blog, please share it with those in need of hope!