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When we our daughter was first diagnosed with PANDAS disease, we had our pediatrician test our entire family to make sure none of us were carriers. (We even tested the dog…!) In doing so, we discovered that our youngest was borderline hypothyroidism. AT AGE 4. I’m embarrassed to say that in the midst of PANDAS, the thyroid thing wasn’t high on my radar. When things calmed down and I had a chance to breathe, I discovered it too is an autoimmune disease. So, two for two on autoimmune diseases before age 7. Great family stats there. And, of course, the Dr. recommended course was for her to…yep, take a pill for the rest of her life. Lovely.
Needless to say, we went another route. Before you quit reading this post…think about this…although there is some discussion about whether brain inflammation exists with PANDAS disease, since PANDAS is also an autoimmune disease, shouldn’t we look at what naturally works for other autoimmune diseases and apply it to our PANDA bears? I found this article extremely informative and helpful. I think following this list could benefit PANDAS kids as well. Just skip over the thyroid specific stuff. 🙂
This blog is written by an anonymous mom. PANDAS disease is ugly. It’s practically unheard of, but it’s not rare. 1 in 200 kids has it. That’s right up there with childhood diabetes…but my pediatrician had never heard of it. This leads me to the question, how many kids out there are misdiagnosed, drugged for “behavioral issues”, OCD, schizophrenia, ADD, Autism, ADHD, Anorexic, or taken from their “bad” parents by well meaning doctors, teachers, and lawyers who don’t know about PANDAS. How many parents are searching for answers every night, in silent agony over losing their child, and have no one to talk to, no one who understands. This blog is for those parents. Those doctors. Those teachers. But mostly, it’s for those children. The ones with the fear in their eyes and the haunted look. The chapped and bloodied hands from washing incessantly. The lost childhood.
Lord, multiply this, share it with those who need it most. I don’t have time, or resources, or knowledge to get it into their hands. If it will bless them, let this reach them. In Jesus Name I pray for each hurting child. Amen.
This blog exists for informational purposes only. Posts should NOT be regarded as medical advice.
No author or commentator shall be liable for advice given.
It is every parent’s responsibility to determine whether camel milk, donkey milk, specific supplements, the ACC protocol or other biomedical interventions are appropriate for their child.
Furthermore, dosing for vitamins and supplements needs to be tailored to an individual’s needs with the help of a professional.
Thank you for reading the blog, please share it with those in need of hope!